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Cystic Fibrosis Tasmania

Friday, May 18, 2012

In medical terms, Cystic Fibrosis is called a recessive genetic disorder. It is considered to be the most common recessive genetic condition affecting Australian children and young adults. Sadly, there is no cure.

I recently attended a luncheon to raise awareness of the condition, where I learned that as many as 1 million Australians are thought to carry the CF gene without actually showing any symptoms.  Tasmania holds the dubious distinction of having the highest rate of carriers in the country and one of the highest in the world. It is estimated that as many as one in every twenty Tasmanians carry the CF gene which equates to around 25,000 carriers in Tasmania alone. The vast majority of those who carry the gene are unaware that they do so.

CF is a condition that seriously affects the lungs and digestion. Sufferers are often required to undergo up to 2 hours of extensive chest physiotherapy each day to clear their airways and to take up to 40 enzyme tablets daily to aid their digestion. Due to recent advances in treatment, sufferers now have a life expectancy into their mid 30’s but many Australians with the disease will never reach adulthood.

65 Roses is an organisation that raises funds to ease the suffering of people who have been afflicted with this terrible disease. If you think you can assist them in any way or just want to learn more the condition itself, log on to www.65rosesday.org or contact them at GPO Box 245, Hobart 7001.

 

 

 

 

 

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